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Epicair & CEC Charity Dinner 2018
Roger Boyagi
Epicair & CEC Charity Dinner 2018
Story
Hi guys,
Epicair and Capital Engineering Consultants have come together to support a charity close to our heart - Save Our Sons.
Save Our Sons was founded in 2008 by Elie & Nancy Eid shorty after their son was diagnosed with Duchenne muscular dystrophy.
Duchenne muscular dystrophy (DMD) is a muscle wasting condition it affects 1 in 3500 boys, It is the number one genetic killer of young boys in the world and affects girls in rare cases.
Currently, Duchenne has no cure.
Any donations big or small will go a long way in making a difference in the lives of children living with Duchenne and helping Save Our Sons in their fight to find a cure.
For more information about Save Our Sons, visit saveoursons.org.au
Donations made through this platform are secure and will be remitted directly through to Save Our Sons.
Thanks so much for your support!
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Save Our Sons INC
Save Our Sons Duchenne Foundation was founded in 2008 and is now the peak body for those living with Duchenne and Becker muscular dystrophy across Australia. Our vision is to find a cure for Duchenne & Becker muscular dystrophy.
Duchenne is an X-linked genetic condition that affects 1 in 3500 boys and in very rare cases 1 in 50 million girls. It is the most common and most severe form of muscular dystrophy and is also known as dystrophinopathy, which refers to a mutation in the dystrophin gene, with a similar milder form of the condition called Becker muscular dystrophy.
Funds raised go directly towards funding research and clinical trials, improving care, funding nurses and providing quality of life enhancing equipment. Save Our Sons aims to make a difference in the lives of all living with Duchenne and Becker muscular dystrophy across Australia.
Our Purpose includes enhancing the quality of life for persons with Duchenne and Becker muscular dystrophy with the ultimate objective of finding a cure for the condition.
To find out more about Save Our Sons Duchenne Foundation, visit www.saveoursons.org.au
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