Together we can find a CURE

Dear FoxG1 friend, Kush is a hero, help his cause.

Why? He was born with a rare genetic disorder FoxG1 and has already inspired us to help humanity. After a year of denial and a year of intense sadness to accept reality, in July this year(2015) we started the next phase of our journey, where we thought of helping him as best as we could.

We have a very vested interested in finding a cure for FoxG1 and set up the sister arm of the International FoxG1 foundation in Australia. We are trying to be innovative and are tackling the issue head on from all aspects. Our aim is to raise awareness of this condition and help find a cure. This is a single gene disorder. He has a deletion in his chromosome 14. This is like one nut missing in a train. What do we do, find the nut and put it back in the train. 

Wins so far: We struggled to get a diagnosis for Kush and had to wait two years and one month  after he was born to get a diagnosis, Kush's efforts have made the test standard. If there is ever another child tested, the parents will get the results straight away. That reduces a lot of "anxiously without knowing what’s wrong" time for the parents. 

What next: We will be advocating for the FoxG1 test to be included in the present non-invasive prenatal tests, so that a predisposition for the foxG1 condition can be identified very close to the time the baby is formed in the womb. This is for the benefits of all future potential parents. 

Long term vision: We will have a gene replacement therapy based cure for FoxG1 condition. This is a long road that we have started by working on mouse model already. We welcome funding to accelerate research. The mouse costs us US$60,000. We have paid for this already; we need funds to start research work. 

Is my donation going to Kush: No Kush is an affected child. Money is being raised to further the causes that the foundation supports namely

1. Advocacy 20%(all future to be parents need the option of being able to do a prenatal test to check baby doesn’t have FoxG1 condition) 
2. Research 60% (FoxG1 is reversed)
3. Support 20% to affected families for equipment needs.(Kids can get wheel chairs and walking frames)

How can I be a part of the journey.

Step1 Donate using the green DONATE button on this page, and a receipt will be emailed to you. Remember to claim this back in your taxes (we will remind you too)

Step2 Share this page with your team, colleagues, friends and family especially any to be mums and help us raise awareness

Thanks for reading and happy donating, remember don’t forget to share your love on Facebook WhatsApp, LinkedIn, Twitter, Pinterest .....

For Kush  and the global FoxG1 family,
Vivek and Monika (proud FoxG1 parents)